European Reference Network for Rare Uro-Recto-Genital Diseases and Complex Conditions (ERN eUROGEN)

ERN eUROGEN Resources Available to You Right Now:

• Our short introductory video: You can watch “Accessing Expertise: How ERN eUROGEN Supports Rare and
Complex Urology Across Europe” to learn more about our network and how to engage with us.
• Clinical Patient Management System (CPMS): You can refer patients with rare uro-recto-genital diseases and
complex conditions for secure virtual multidisciplinary discussions with ERN eUROGEN experts.
• Patient Registry: You can request access to join the Registry, add patient data, and participate in collaborative
research studies.
• Guidelines and Patient Information: You can use and share our comprehensive evidence-based clinical
guidelines and plain-language patient resources in your daily clinical practice.
• Webinars: You can attend our free live webinars and watch all past webinar recordings on demand.
• Educational Book: You can purchase Rare and Complex Urology, a practical reference guide written by ERN
eUROGEN experts.
• Newsletter: You can subscribe to stay updated on ERN eUROGEN activities, events, resources, and
opportunities.
For further details, please visit our website: eurogen-ern.eu.

Dedicated Support for Ukrainian Clinicians
Webinar series for Ukraine
We offer a dedicated series of educational webinars on the management of Spina Bifida and Other Dysraphisms
(SBoD) designed specifically for Ukrainian clinicians. These webinars aim to support clinical decision-making,
strengthen local expertise, and improve patient outcomes despite the ongoing challenges. Recordings can be found
here: https://eurogen-ern.eu/webinars/past-webinars

Шуляк О.